But for 39-year-old Matt Ratcliffe of Narooma, it’s just another project under his belt.

In 2008, Matt was diagnosed with motor neurone disease, which kills more than 10 Australians each week. The first week of May is Motor Neurone Disease Week.

Matt’s mum Linda will be holding a stall at the Narooma Plaza shopping centre tomorrow, Thursday, April 21, from 9am where she will be selling MND merchandise including teddies, blue cornflowers and more.

Matt is now facing the fact that over the next few years he will progressively lose function in his limbs, his ability to speak and swallow, while his mind and senses will remain intact.

This has not stopped him from pursuing his goals, being a loving and dedicated father and participating in the community's planning of the Narooma Oyster Festival (May 13-15) and local Auskick sessions.

He is again organising the oyster bar at the Oyster Festival that last year went through 1000 dozen oysters, this year he hopes to do even more.

Matt says being a good role model for his children is what motivates him, and keeps him active.

He is no stranger to MND having looked after his own father during his battle with the condition.

Matt is now just five weeks away from completing a massive renovation project on his house, which he managed and which includes ramps and new wheelchair friendly bathroom.

He is planning to celebrate his 40th birthday in his new house later this year - a milestone he didn't think he'd get to after his diagnosis.

About MND:

Motor neurone disease takes the life of more than 10 Australians every week. There is no known cause or cure.

During MND Week May 1-7, people can support people living with MND by making a donation, volunteering or buying a blue cornflower - a symbol of hope - through MND Associations or online at www.mndaust.asn.au/mnd-week